News Roundup

Hi! It’s been awhile since I’ve posted my life has been a mess. Between work and dealing with my “lack of” care manager not listening to me. I’ve doing a couple of advocacy projects as well.

The Feds waved money at the Governor’s face. However, they’re not going to give it to us right away until we have a plan to use it properly HAHAHAHAHAHAHA! Which means, that the disabled folk get to have a say. So I was working on my “written testimony” all last month and submitted it yesterday. HOPEFULLY they’ll actually listen to me this time. From repealing the college rule, a specialized healthcare insurance outside Medicaid through OPWDD, and to not have Governor appointed shmucks represent us anymore! Look what that did for us during COVID? Speaking of healthcare…

Thanks to a lovely little email from CIDNY, there is a state law in committee for a universal healthcare for those like us but, here’s the catch —everyone has to pay taxes on it. In addition, they’re making the same STUPID MISTAKE of having a Governor appointed committee to regulate our services through the new bill. UGH! IT HASN’T WORKED BEFORE COVID AND IT NEVER HAS! WHY DO YOU STUPID ABLES MAKE THE SAME STUPID MISTAKES? A GOVERNOR APPOINTED COMMITTEE WILL GIVE HIM THE UPPER HAND AND HURT US AND OUR NEEDS!!!! DIDN’T CIDNY READ ALL THIS BEFORE ENDORSING THIS?? WE’RE NOT BEING HELPED AT ALL!! For people who care about our independence from the system, they need to make sure it helps us WITHOUT our able neighbors paying extra and WITHOUT being treated like we’re vegetables by government shlubs. These Governor appointed people NEVER advocate for us and never will so I say NAY to the new bill in committee until it helps both sides.

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